By the end of 2018 forty-two, hospitals were participating in collecting data. In 2018, 1944 patients were included in NorCog and a total of 10649 patients has been included from 2008 to 2018.
The patients included in 2018 had a mean age of 75 years, 51 % were female, 60 % were married or living with their partner, and 35 % received health services. Forty-seven percent were diagnosed with dementia, 33 % with mild cognitive impairment (MCI), 12 % with subjective cognitive impairment and 8 % had other diagnoses, like depression.
Quality indicators developed for NorCog:
- the proportion of patients that have reported on Patient related outcome measures (PROM)
- the proportion of patients where information is collected about neuropsychiatric symptoms
- the proportion of patients that have been assessed for depressive symptoms
- the proportion among patients with dementia, that receive a specific etiologic diagnosis
- the proportion of patients with mild cognitive impairment or dementia that was referred to health service after the examination
The development of an electronic registration solution for NorCog is an ongoing process since 2018. An electronic registration of a reduced number of variables will be tried out during a pilot period at four centers. A reduction of the number of variables is performed to enable electronic registration and to ensure registration of the quality indicators and other important variables of the register.
By the end of 2018, 44 studies have been approved by the steering committee. Most studies have a clinical approach where the results will have the potential to influence the quality of the patient service.