Sammendrag på engelsk (abstract)
Background: Young onset dementia (YOD) develops before 65 years old with specific-age-related adverse consequences for quality of life (QoL). We systematically examined the factors related to QoL of people with YOD and their caregivers.
Method: This systematic review used the PRISMA methodology. The search was undertaken on July 5th, 2015, using Cochrane, Pubmed, SciELO, PsycINFO, Scopus and Thomson Reuters Web of Science electronic databases. The search keywords included “early onset” and “young onset” combined with, “dementia”, “Alzheimer,” “vascular dementia”, “mixed dementia”, “frontotemporal dementia” “quality of life”, “well-being” and “unmet needs”. Nine studies were included. We revised objectives, study design, sample, instruments and results related to the QoL.
Results: People with YOD rated their own QoL signicantly higher than their caregivers. Greater awareness of disease among people with YOD is associated with better QoL in caregivers. A relationship was found between unmet needs and daytime activities, lack of companionship and difficulties with memory. Issues associated to unmet needs were prolonged time to diagnosis, available health services and lack of caregiver’s own future perspective. There was no association between unmet needs and psychotropic drug use. Unmet needs were related to several domains of caregivers’ QoL.
Conclusion: The study of more homogeneous samples and the use of a clear concept of QoL should be considered. The present study highlights the need of future research in a wider range of countries with specifically instruments for YOD. It would be interesting if studies could trace parallels with late onset dementia groups.
Background: Young onset dementia (YOD) develops before 65 years old with specific-age-related adverse consequences for quality of life (QoL). We systematically examined the factors related to QoL of people with YOD and their caregivers.
Method: This systematic review used the PRISMA methodology. The search was undertaken on July 5th, 2015, using Cochrane, Pubmed, SciELO, PsycINFO, Scopus and Thomson Reuters Web of Science electronic databases. The search keywords included “early onset” and “young onset” combined with, “dementia”, “Alzheimer,” “vascular dementia”, “mixed dementia”, “frontotemporal dementia” “quality of life”, “well-being” and “unmet needs”. Nine studies were included. We revised objectives, study design, sample, instruments and results related to the QoL.
Results: People with YOD rated their own QoL signicantly higher than their caregivers. Greater awareness of disease among people with YOD is associated with better QoL in caregivers. A relationship was found between unmet needs and daytime activities, lack of companionship and difficulties with memory. Issues associated to unmet needs were prolonged time to diagnosis, available health services and lack of caregiver’s own future perspective. There was no association between unmet needs and psychotropic drug use. Unmet needs were related to several domains of caregivers’ QoL.
Conclusion: The study of more homogeneous samples and the use of a clear concept of QoL should be considered. The present study highlights the need of future research in a wider range of countries with specifically instruments for YOD. It would be interesting if studies could trace parallels with late onset dementia groups.
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Trends in Psychiatry and Psychotherapy, 2016
